Two years ago, September 18, 2012, I was 35 weeks pregnant, laying on an ultrasound table, hearing a doctor tell me words I didn’t understand. Words that scared us… spina bifida, myelomeningocele, neural tube defect, hydrocephalus, disabled, clubbed feet, lemon sign, neural tube surgery, brain surgery, shunt, Chiari Malformation, urology issues, bowel issues, development issues, […]
At least that’s what Parker calls Colten’s new braces! As of our last post, we were waiting on some equipment – new AFOs, KAFOs, and a walker. Still no official walker, but great timing on the leg braces! I’m sure I won’t be so lucky every time he gets new braces, to get him to […]
Colten got his mobile stander last week! We’ve been working on this for a few months now and were anxiously awaiting this piece of equipment. But MAN is it a Hate/Love/Hate Relationship. Let me break it down… Colten HATES getting strapped into this. He LOVES wheeling around in it. He HATES when I take him […]
Colten recently had his intake with Macomb ISD for their special education and EarlyOn services. As much as it’s interesting to see the reports they file, it still feels like a big stab in the heart when you read all the developmental areas they’re missing. Because when you live in the moment with this kid, […]
The Adventures of Colten Robert 