Sounds like an oxymoron. An infant on a treadmill?! How can this be?? Infants can’t even walk! After Colten was born we were invited to join an intervention study through the University of Michigan’s Kinesiology department. The study is exploring the benefits of early intervention efforts on myelomeningocele babies. They are looking at bone density, […]
Colten’s motor response has been completely absent below the knees. Until a few days ago. When feeding him, we often mess with his toes, feet and calves, hoping to stimulate his body to make the connection that “hey, there’s something down there!” We were told that usually 2-3 weeks post-op is when you have what […]
Discharged! We are on our way home with a functional shunt (that hopefully lasts longer than two weeks) and a new battle badge (scar is an icky word). Back to his turban bandage… My parents came last night and we had a little fun at Colten’s expense, celebrating his Arabic heritage: When Colten’s turban bandage […]
I am incredibly tired so this is short. Colten’s surgery went very well. He’s doing great, back in the regular room. The probe part of the shunt, the piece that goes into the ventricles and starts the drainage process, was not functioning properly. It was early in the malfunction so they were surprised we caught […]
Colten and I arrived at Mott Children’s Emergency Room around 5:30 PM. They were expecting us, which made it easy to check-in. Heck, the ER staff even called me around 4:30 to ask where we were since we had not shown up yet but were on their “expect soon” list. Talk about good ER service! […]
I hope not. I hope it’s us being paranoid but I’m thinking there’s an issue with Colten’s shunt. We will be taking Colten back to Mott Children’s today at some point. There isn’t a rush but his fontanel (soft spot on top of head) is very full and tight – similar to how it was […]
[Today was a super-long day, so this is a super-long post!] Tuesday we came back to Mott Children’s Hospital for Colten’s follow-up cranial ultrasound and long story short, had some movement of appointments for the better. So today (Thursday) Richard and I spent the day in Ann Arbor for Colten’s first “Myelo Clinic”. During clinic, […]
The Adventures of Colten Robert 