Diagnosis Day – Two Years Later

Two years ago, September 18, 2012, I was 35 weeks pregnant, laying on an ultrasound table, hearing a doctor tell me words I didn’t understand. Words that scared us… spina bifida, myelomeningocele, neural tube defect, hydrocephalus, disabled, clubbed feet, lemon sign, neural tube surgery, brain surgery, shunt, Chiari Malformation, urology issues, bowel issues, development issues, […]

Clapping, Rolling, Signing & Sitting

Bet you were wondering if we would go a whole month without posting… NOPE! Life has been very chaotic around here and I just have not had the frame of mind to sit and blog. As I sit in the older two boys’ room this evening, fighting my third bloody nose of the day, sweltering […]

Feet, Treadmill, New Toy, Rolling and Resources

Lots of randomness in this post. Bear with us! I was perusing some spina bifida related videos on YouTube today and Children’s Hospital of Philidelphia has a wonderful 12-part series about Spina Bifida, from diagnosis to surgery and beyond. This specific one is one of the best descriptive videos about what Spina Bifida is and […]