It’s the greatest superhero fight ever! Not really but the title made me think of superheros. And it put a hilarious image in my head! Anyhow, in our last post from Colten’s Myelo Clinic check, we mentioned that there was slight concern about his head shape. Between that and the fact that his head circumference […]
It was the weirdest thing last night… Colten was playing in his play yard then suddenly he rolled over, stuck his butt up, crawled over to the couch, pulled himself up and started RUNNING around the house! I was completely freaking out because of course he is only two months old and should not be […]
Colten and I arrived at Mott Children’s Emergency Room around 5:30 PM. They were expecting us, which made it easy to check-in. Heck, the ER staff even called me around 4:30 to ask where we were since we had not shown up yet but were on their “expect soon” list. Talk about good ER service! […]
I hope not. I hope it’s us being paranoid but I’m thinking there’s an issue with Colten’s shunt. We will be taking Colten back to Mott Children’s today at some point. There isn’t a rush but his fontanel (soft spot on top of head) is very full and tight – similar to how it was […]
The past week was pretty difficult for Richard and I. While we were excited to go home from our NICU stay after Colten’s myelomeningocele repair, we left feeling like our boy wasn’t doing so well and that the boy we brought to Mott Children’s Hospital wasn’t really the same boy we were taking home. The […]
Colten had another cranial ultrasound Monday. It showed an increase in the ventricles of the brain, which means an increase in cerebral spinal fluid. His head also measured an increase, at 39cm (and this morning it measured 39.5cm). He was born at 36cm and normal rate of increase is no more than about 1cm per […]
The Adventures of Colten Robert 