Colten got his mobile stander last week! We’ve been working on this for a few months now and were anxiously awaiting this piece of equipment. But MAN is it a Hate/Love/Hate Relationship. Let me break it down… Colten HATES getting strapped into this. He LOVES wheeling around in it. He HATES when I take him […]
While there are a lot of things I love about going to the Myelo Clinic at C.S. Mott Children’s Hospital, such as seeing most of the practitioners all in one shot, there are things that are overwhelming about the clinic, such as seeing most of the practitioners all in one shot. Even though I had […]
When a doctor tells you your son has no motor or sensory response on his legs at all, it is pretty damn awesome to see him use a Johnny Jumper! We have not used this much with him because the treadmill study folk want us to avoid use of it until after he’s done with […]
Amidst all those crazy abbreviations for medical exams, today brought a weird allergic reaction, a pending test result, a fairly good test result, a series of unknown data, and an interesting observation. Oh yes, and a run-in with my favorite Mott buddies! Warning… this post is ridiculous in length. As in you might need to […]
Lots of randomness in this post. Bear with us! I was perusing some spina bifida related videos on YouTube today and Children’s Hospital of Philidelphia has a wonderful 12-part series about Spina Bifida, from diagnosis to surgery and beyond. This specific one is one of the best descriptive videos about what Spina Bifida is and […]
We have some appointments down at Mott Children’s in the next couple of weeks – follow-ups with Pediatric Neurology and Pediatric Urology. So before another round of medical posts, here’s just an update on life in general. Those of you that know us know that our family leans a little to the MSU side of […]
Sounds like an oxymoron. An infant on a treadmill?! How can this be?? Infants can’t even walk! After Colten was born we were invited to join an intervention study through the University of Michigan’s Kinesiology department. The study is exploring the benefits of early intervention efforts on myelomeningocele babies. They are looking at bone density, […]
The Adventures of Colten Robert 