It’s the greatest superhero fight ever! Not really but the title made me think of superheros. And it put a hilarious image in my head! Anyhow, in our last post from Colten’s Myelo Clinic check, we mentioned that there was slight concern about his head shape. Between that and the fact that his head circumference […]
Lots of randomness in this post. Bear with us! I was perusing some spina bifida related videos on YouTube today and Children’s Hospital of Philidelphia has a wonderful 12-part series about Spina Bifida, from diagnosis to surgery and beyond. This specific one is one of the best descriptive videos about what Spina Bifida is and […]
Colten interacted with one of his feet today 🙂 This probably seems pretty silly to some of you, but it made me super excited! One of his goals that we set with EarlyOn, was that by 6 months of age, we want him to “know” he has feet, since he cannot really move or feel […]
When we brought Colten home from the hospital back in October, Richard was changing Colten’s diaper for the first time at home and in complete exasperation said, “We are never going to be able to leave him with anyone! We are never going to be able to go anywhere ever again!” At the time, we […]
The Adventures of Colten Robert 