It’s something we read about from day 1 – the questions kids with Spina Bifida ask when they’re old enough to realize that everyone doesn’t have Spina Bifida. I remember reading other parents’ blogs or posts on social media about their child asking things such as, “When will my Spina Bifida get better?”, “Will I […]
I’m not sure, even after 30-some years of life, that I have as many scars as this child. And last week Monday, he added a doozy of a scar to his head, and his second ambulance ride. If you’ve never been around someone that is bleeding from their head, let me forewarn you: heads bleed […]
Two years ago, September 18, 2012, I was 35 weeks pregnant, laying on an ultrasound table, hearing a doctor tell me words I didn’t understand. Words that scared us… spina bifida, myelomeningocele, neural tube defect, hydrocephalus, disabled, clubbed feet, lemon sign, neural tube surgery, brain surgery, shunt, Chiari Malformation, urology issues, bowel issues, development issues, […]
When I was progressing through my teacher education classes at MSU, I was focusing on early childhood and Deaf Education, so IFSPs – Individualized Family Service Plans, were of particular interest to me. Granted, I expected to be on the “other side of the table” during these meetings! IFSPs are done when children are from […]
GO COLTEN!!! Today he made forward movement – a scoot, if you will! Colten just turned 11 months and has been moving around incredibly well using his technique of twisting, rolling, sitting, and more twisting, rolling and sitting. He moves himself all around the living room to get to toys. But today, TODAY he scooted! […]
Bet you were wondering if we would go a whole month without posting… NOPE! Life has been very chaotic around here and I just have not had the frame of mind to sit and blog. As I sit in the older two boys’ room this evening, fighting my third bloody nose of the day, sweltering […]
Most parents, as they watch their babies develop the first couple years of life, get great joy out of seeing their child reach all the milestones – reaching, rolling, sitting, crawling, standing, walking. These happen at a fairly normal pace and we anticipate them eagerly! I know I watched with pride as our first son, […]
Today was the first day. The first time. The first of many, many times sure to be in our future. Today I was at an event in Lansing (The Great Cloth Diaper Change – a worldwide event in the Guinness Book of World Records!) and the mom/baby pairs were lined up in somewhat of an […]
The Adventures of Colten Robert 