Over the last two weeks, Colten has met three new specialists he will be working with: teacher, physical therapist, and occupational therapist. Based on the goals of his IFSP, he will meet with the teacher once a month at our home and she will evaluate his social/emotional/cognitive milestones and work with him and us to […]
When I was progressing through my teacher education classes at MSU, I was focusing on early childhood and Deaf Education, so IFSPs – Individualized Family Service Plans, were of particular interest to me. Granted, I expected to be on the “other side of the table” during these meetings! IFSPs are done when children are from […]
Let’s start by clearing up some misconceptions – I’ve heard so many in the past few weeks! While the helmet may in fact protect Colten’s noggin from bumps, lumps and brothers, that is not the purpose of it. Someone out there does actually make little padded hats (they resemble the early version of football helmets, […]
The words that keep replaying over and over in my head from earlier today are “he should have been fitted MONTHS ago”. It’s like that song that is stuck in your head and you sing it all day over and over, the same lines, never really singing the whole thing. There are enough things with […]
How can I not start the post with a picture when this kid is so photogenic?! (Warning: this post is lengthy, but I scattered tons of pictures and videos throughout.) This past Thursday, Colten had his 9-month checkup with the Myelomeningocele Clinic at U of M C.S. Mott Children’s Hospital. At the Myelo Clinic, each […]
Bet you were wondering if we would go a whole month without posting… NOPE! Life has been very chaotic around here and I just have not had the frame of mind to sit and blog. As I sit in the older two boys’ room this evening, fighting my third bloody nose of the day, sweltering […]
Before I get into the nitty gritty about the CT scan, Colten would like to share a few accomplishments! Today he figured out that when he rolls over, he can roll over another time and get to more toys that his brothers have left strewn about. Funny thing is that he really only rolls onto […]
Amidst all those crazy abbreviations for medical exams, today brought a weird allergic reaction, a pending test result, a fairly good test result, a series of unknown data, and an interesting observation. Oh yes, and a run-in with my favorite Mott buddies! Warning… this post is ridiculous in length. As in you might need to […]
Sub-title: Cranio Doc Calls Mom NOT Neurotic! Last week Friday, we took Colten down to Mott for an appointment we had requested to have his head shape looked at more closely. The appointment was with the pediatric neurosurgery department, since they already have had dealings with his skull/head (shunted hydrocephalus, mild Arnold Chiari II malformation […]
It’s the greatest superhero fight ever! Not really but the title made me think of superheros. And it put a hilarious image in my head! Anyhow, in our last post from Colten’s Myelo Clinic check, we mentioned that there was slight concern about his head shape. Between that and the fact that his head circumference […]
The Adventures of Colten Robert 