I don’t want to scare you by the title. All is good here – really! But that’s what came to me because in my head, the past seven months or so has been me working really hard at ruling out everything I can that was pointing to a tethered cord surgery. And in our minds, tethered […]
To celebrate Spina Bifida Month, we went to Myelo clinic a bit early! Well, not really. It is Spina Bifida Awareness Month, and we did go to Myelo clinic, but the two are unrelated. In honor of Spina Bifida Awareness month though, this handsome fellow has been circulated around the internet a bit so we […]
Two years ago, September 18, 2012, I was 35 weeks pregnant, laying on an ultrasound table, hearing a doctor tell me words I didn’t understand. Words that scared us… spina bifida, myelomeningocele, neural tube defect, hydrocephalus, disabled, clubbed feet, lemon sign, neural tube surgery, brain surgery, shunt, Chiari Malformation, urology issues, bowel issues, development issues, […]
At least that’s what Parker calls Colten’s new braces! As of our last post, we were waiting on some equipment – new AFOs, KAFOs, and a walker. Still no official walker, but great timing on the leg braces! I’m sure I won’t be so lucky every time he gets new braces, to get him to […]
I really wanted to take a video and post it but these things crossed my mind: 1. What if he actually tips? 2. How bad of a mother am I standing here watching him do this and VIDEO TAPING IT? 3. My mother will have a heart attack if she sees this. Yesterday we were […]
Colten got his mobile stander last week! We’ve been working on this for a few months now and were anxiously awaiting this piece of equipment. But MAN is it a Hate/Love/Hate Relationship. Let me break it down… Colten HATES getting strapped into this. He LOVES wheeling around in it. He HATES when I take him […]
We started our blog on September 19, 2012, a day that is etched in our minds forever. This was the day we were told that the baby inside me has Spina Bifida. He was 35.5 weeks gestation; we delivered at 38. I look back and think, how did I even have the right frame of […]
When we last chatted, you were falling asleep at my extensively long post about the first two days of our medical marathon. Now that you are awake again, let’s finish this off! Friday Colten and I went back to Ann Arbor again for his FINAL Treadmill Study testing. FINAL!!!! YAAAAAY! While this was a very […]
While there are a lot of things I love about going to the Myelo Clinic at C.S. Mott Children’s Hospital, such as seeing most of the practitioners all in one shot, there are things that are overwhelming about the clinic, such as seeing most of the practitioners all in one shot. Even though I had […]
GO COLTEN!!! Today he made forward movement – a scoot, if you will! Colten just turned 11 months and has been moving around incredibly well using his technique of twisting, rolling, sitting, and more twisting, rolling and sitting. He moves himself all around the living room to get to toys. But today, TODAY he scooted! […]
The Adventures of Colten Robert 