This morning Colten had surgery #10. Thankfully, it was a simple outpatient one and we are already home! If you look back on posts, you’ll notice there is no defined surgery #9. His big 13-hour surgery this past summer was #8 (bladder work) as well as #9 (intestinal/bowel work). The primary surgical procedure for today […]
Surgery is not necessarily something we look forward to, especially when our children have to undergo it. However, we have been battling ear infections, repeated ear drum ruptures (twice within one month), and a tube stuck in an ear canal for at least six months. We are ready to start again on a “clean” slate. […]
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Colten got his mobile stander last week! We’ve been working on this for a few months now and were anxiously awaiting this piece of equipment. But MAN is it a Hate/Love/Hate Relationship. Let me break it down… Colten HATES getting strapped into this. He LOVES wheeling around in it. He HATES when I take him […]
A much-delayed update… All went well with Colten’s surgery. They were able to get in laparoscopically and do part 1 of 2. Part 2 will take place in about six months. Unfortunately part 2 cannot be done laparoscopically due to all the shunt tubing in Colten’s abdomen. So he’ll get a nice long incision straight […]
Colten is scheduled for surgery on Monday, November 4, 2013. His last surgery, his shunt revision, was November 6, 2012. SO CLOSE to making it a year without a surgery! Actually, I’ve read a number of different blogs from families with Spina Bifida and/or other complications and the fact that we made it this long […]
I am incredibly tired so this is short. Colten’s surgery went very well. He’s doing great, back in the regular room. The probe part of the shunt, the piece that goes into the ventricles and starts the drainage process, was not functioning properly. It was early in the malfunction so they were surprised we caught […]
Colten and I arrived at Mott Children’s Emergency Room around 5:30 PM. They were expecting us, which made it easy to check-in. Heck, the ER staff even called me around 4:30 to ask where we were since we had not shown up yet but were on their “expect soon” list. Talk about good ER service! […]
The two older boys went off with one of my sisters to a Halloween party so we have a little peace, quiet and TIME to post tonight! Colten continues to heal and be a pretty normal baby. Here are some pictures of his scars… Today is also the first day he can lay on his […]
The past week was pretty difficult for Richard and I. While we were excited to go home from our NICU stay after Colten’s myelomeningocele repair, we left feeling like our boy wasn’t doing so well and that the boy we brought to Mott Children’s Hospital wasn’t really the same boy we were taking home. The […]
The Adventures of Colten Robert 