It has been a LONG road to today. Last July, specifically, July 17, 2019, Colten was a very excited recipient of a GoHawkeye grant, which allowed him to get a FreeWheel from Living Spinal. Today, almost a YEAR later, he is finally able to actually benefit from this amazing grant and opportunity! Let me step […]
I don’t want to scare you by the title. All is good here – really! But that’s what came to me because in my head, the past seven months or so has been me working really hard at ruling out everything I can that was pointing to a tethered cord surgery. And in our minds, tethered […]
At the end of January, Colten got new AFOs along with torsion, or twister cables, attached to AFO shoes. This has been a whole new production for us, just as his KAFOs were an adjustment as well. Over the past number of months, we’ve been using with great success the rotation straps from our local school […]
While there are a lot of things I love about going to the Myelo Clinic at C.S. Mott Children’s Hospital, such as seeing most of the practitioners all in one shot, there are things that are overwhelming about the clinic, such as seeing most of the practitioners all in one shot. Even though I had […]
Colten is scheduled for surgery on Monday, November 4, 2013. His last surgery, his shunt revision, was November 6, 2012. SO CLOSE to making it a year without a surgery! Actually, I’ve read a number of different blogs from families with Spina Bifida and/or other complications and the fact that we made it this long […]
Let’s start by clearing up some misconceptions – I’ve heard so many in the past few weeks! While the helmet may in fact protect Colten’s noggin from bumps, lumps and brothers, that is not the purpose of it. Someone out there does actually make little padded hats (they resemble the early version of football helmets, […]
The words that keep replaying over and over in my head from earlier today are “he should have been fitted MONTHS ago”. It’s like that song that is stuck in your head and you sing it all day over and over, the same lines, never really singing the whole thing. There are enough things with […]
The Adventures of Colten Robert 