The day after Christmas, Richard and I enjoyed a quiet, post-holiday-chaos evening at home with just Colten. Parker and Max stayed at my parents’ after the Christmas day festivities. Good thing too… I think Parker had consumed at least five cookies between 8-9pm! We had just finished watching a movie and Colten was sound asleep […]
We have been to a lot of appointments in Colten’s short life. Most of them revolve around doctors reminding us what is wrong, what he cannot do, or the future hardships he may endure. We get a lot of paperwork that talks about disabilities, insurance, assistance, programs and more. Today’s appointment was different. We had […]
[This post was originally drafted on 12/14 but I forgot to remove it from draft mode; so the reference to “today” isn’t really today, 12/20!] I never realized how often I touch babies’ toes, or how often everyone touches babies’ toes, until everytime it happens I am reminded that he cannot feel it. That certainly […]
Just wanted to share some great smiles from the other day, if you feel like watching! Colten Cooing & Smiling with Parker
Here is a prelude to the video at the end of this post… In case you have not been reading from “day 1” here, Colten was born 10/3/2012, with Spina Bifida myelomeningocele, level L4-5 (low lumbar). Colten’s spine and nerves did not grow in a typical fashion. He cannot feel parts of his legs and […]
It was the weirdest thing last night… Colten was playing in his play yard then suddenly he rolled over, stuck his butt up, crawled over to the couch, pulled himself up and started RUNNING around the house! I was completely freaking out because of course he is only two months old and should not be […]
Today was Colten’s first PT appointment with EarlyOn Michigan. He had some appointments back in the hospital, and EarlyOn came to do paperwork and lay out his IFSP a few weeks ago. But today we finally got to work! I am still struggling with therapies as a whole. Part of me really wants to ignore […]
This crazy thought has been rattling around in my head for a couple weeks: I don’t want my son to walk. That’s insane, right?! Who wouldn’t want their child to walk?! But there is that thought, rattling around. I can’t seem to shake it. And it makes me feel guilty. Worst mother EVER. Then tonight […]
The Adventures of Colten Robert 