Colten had another cranial ultrasound Monday. It showed an increase in the ventricles of the brain, which means an increase in cerebral spinal fluid. His head also measured an increase, at 39cm (and this morning it measured 39.5cm). He was born at 36cm and normal rate of increase is no more than about 1cm per week. He is less than two weeks old and has increased 3.5cm. So we are heading back to Mott Children’s Hospital this morning for Colten’s 1:00 PM shunt placement surgery with Dr. Maher (he did Colten’s spinal cord surgery as well).
The surgery itself is pretty common and while we have a normal amount of anxiety that comes with putting your infant child through another surgery, especially one where they have to drill through the skull and get into the brain, the hard thing to swallow with this is that a shunt isn’t a grand “fix it” solution. So while we will avoid brain damage due to hydrocephalus (so far as we can tell), shunts themselves require monitoring and revisions over time. It will be another lifelong piece of the puzzle, another part of our new normal.
Today’s post is short… Life is a little more crazy and busy now that everyone is home and daily doctor appointments have been our week so far. We will post again after the shunt placement. Recovery is minimal, so they say. Colten and I will stay overnight for about 24 hours if all goes well. Longer if there are any complications in surgery. We hope to join the mass of people descending upon the Okemos Applebee’s on Saturday for a special pancake breakfast to support Colten! Thank you to everyone who has reached out in one way or another to help us – we appreciate your concern, generosity and love!
Hugs and prayers for Colten ❤
I have been thinking about Colton and your family today. I know it is hard to send your baby off to surgery, but know you are doing the best thing for him! At first I had a lot of anxiety about Nina’s shunt malfunctioning. Now, 6months later it’s just part of our normal. We are used to it, know her normal very well and know what to keep an eye out for. You guys will get there too, if your not already! If you ever have concerns call Dr. Maher’s nurse. I did about a million times in the beginning. I would apologize each time i i called and she would always tell me not to. She was great about assuring me that she was there to answer our questions and help ease our minds,and keep Nina safe and healthy. I am sending good thoughts to you in Ann Arbor!
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