Colten had two more tests before being discharged, a VCUG and an MRI. The VCUG came back showing that Colten has urinary reflux back into his kidneys. So he needs to stay on antibiotics indefinitely. Urology will follow up with us in 3-4 months; surgery will be required to correct this issue – it is not urgent though. The MRI has not been read by neurology but it was really just a baseline MRI to have on file.
The great news is that I’m posting this from the car on our way home!!! We pulled out of Mott Children’s Hospital at 9:00 PM. I’m so happy, and Richard is so scared (nervous about hydrocephalus). But we have our 11 page discharge summary, supplies to get us started, and I have to take Colten back to Mott Monday morning for his follow-up cranial ultrasound.
So we are almost home… Parker & Max will get home tomorrow, and we will enjoy a family weekend before all the various appointments start flooding out schedule.
Thank you everyone for your support, for reading and learning with us, for the visits and well-wishes. We are amazed at how many people have reached out to us and we appreciate every bit of support! Thank you for joining us on Colten’s adventure!