Surgery is not necessarily something we look forward to, especially when our children have to undergo it. However, we have been battling ear infections, repeated ear drum ruptures (twice within one month), and a tube stuck in an ear canal for at least six months. We are ready to start again on a “clean” slate. […]
It’s something we read about from day 1 – the questions kids with Spina Bifida ask when they’re old enough to realize that everyone doesn’t have Spina Bifida. I remember reading other parents’ blogs or posts on social media about their child asking things such as, “When will my Spina Bifida get better?”, “Will I […]
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I don’t want to scare you by the title. All is good here – really! But that’s what came to me because in my head, the past seven months or so has been me working really hard at ruling out everything I can that was pointing to a tethered cord surgery. And in our minds, tethered […]
There are a few things that have held me back from posting recently… our last post was our 100th post. I had planned on doing a 100 things we’ve learned type of post, but just never found the time, hence the 100th came and went without much ado. But then I thought, I’ll do 101! Well, as […]
It’s been a while! Four months since our last post. Why the hiatus? We were enjoying a bit of summer fun before our newest bundle came along…and did SHE ever come along! Our little boys now have a baby sister – Sophia Rose! She joined us July 17 and we’ve been spending all our time […]
I’m not sure, even after 30-some years of life, that I have as many scars as this child. And last week Monday, he added a doozy of a scar to his head, and his second ambulance ride. If you’ve never been around someone that is bleeding from their head, let me forewarn you: heads bleed […]
As I got out of the car and looked around at the people and the bikes spread across the parking lot, tears came to my eyes. The generosity of people never ceases to amaze me. These people didn’t have to be here. These bikes didn’t need to be made. They didn’t need to bring all […]
When you give birth to a baby with special needs, the thought of having more children is wrecked with anxiety, hope, fear, guilt, and love. You wonder if “it” will happen again. Then you feel guilty because frankly, you love your child, special needs and all, and accept them just as they are. In one […]
Tomorrow is Colten’s 6th surgery… If you had told me a few years ago I would have to see one of my children undergo multiple surgeries before the age of three… and that three of those surgeries would even take place before the age of 5 weeks of age… I think I would have buried […]
The Adventures of Colten Robert 