It’s probably safe to say that all parents get over being squeamish about poop after, well, a week. Those first infant tarry poops really just get you right in the poop game! Then as your child gets older, you experience other milestones such as when they first start eating food and the poop just changes. […]
At the end of January, Colten got new AFOs along with torsion, or twister cables, attached to AFO shoes. This has been a whole new production for us, just as his KAFOs were an adjustment as well. Over the past number of months, we’ve been using with great success the rotation straps from our local school […]
I feel like I’ve started more than a couple posts with this sentiment, each time Colten has achieved some level of stepping/walking, with one type of mobility aid or another. We were so proud and amazed when Colten started cruising along furniture, then walking through his parallel bars, then walking with his walker. It was […]
To celebrate Spina Bifida Month, we went to Myelo clinic a bit early! Well, not really. It is Spina Bifida Awareness Month, and we did go to Myelo clinic, but the two are unrelated. In honor of Spina Bifida Awareness month though, this handsome fellow has been circulated around the internet a bit so we […]
Two years ago, September 18, 2012, I was 35 weeks pregnant, laying on an ultrasound table, hearing a doctor tell me words I didn’t understand. Words that scared us… spina bifida, myelomeningocele, neural tube defect, hydrocephalus, disabled, clubbed feet, lemon sign, neural tube surgery, brain surgery, shunt, Chiari Malformation, urology issues, bowel issues, development issues, […]
While the original slogan, “Keep Calm and Carry On”, was first brought to life on a motivational poster designed by the British in 1939 as they prepared for World War II, I am thankful to say that our slogan does not precede any wars, surgeries or the like. While this meme has been used in […]
When your unborn or newborn child is diagnosed with Spina Bifida Myelomeningocele, there are a number of things that tend to go along with it that you can somewhat see coming over the course of childhood and on into adulthood: hydrocephalus, Chiari II Malformation, clubbed feet, bladder and bowel issues, tethered cord. These things are […]
At least that’s what Parker calls Colten’s new braces! As of our last post, we were waiting on some equipment – new AFOs, KAFOs, and a walker. Still no official walker, but great timing on the leg braces! I’m sure I won’t be so lucky every time he gets new braces, to get him to […]
I really wanted to take a video and post it but these things crossed my mind: 1. What if he actually tips? 2. How bad of a mother am I standing here watching him do this and VIDEO TAPING IT? 3. My mother will have a heart attack if she sees this. Yesterday we were […]
Colten got his mobile stander last week! We’ve been working on this for a few months now and were anxiously awaiting this piece of equipment. But MAN is it a Hate/Love/Hate Relationship. Let me break it down… Colten HATES getting strapped into this. He LOVES wheeling around in it. He HATES when I take him […]
The Adventures of Colten Robert 