Colten is scheduled for surgery on Monday, November 4, 2013. His last surgery, his shunt revision, was November 6, 2012. SO CLOSE to making it a year without a surgery! Actually, I’ve read a number of different blogs from families with Spina Bifida and/or other complications and the fact that we made it this long […]
A week or so ago, I was lamenting to Richard about our luck, or lack-thereof, over the past couple of years. There were also some things that at the time seemed “bad” but ended up leading us to a better place. In the moment though, it was so hard to see the silver lining or […]
As I finally sit down to write another post, it’s 10:30 PM on Colten’s 1st birthday. A year ago today he was getting into an ambulance and heading down to the University of Michigan C.S. Mott Children’s Hospital. I had held him for three glorious hours and kissed him goodbye. We were told he would […]
GO COLTEN!!! Today he made forward movement – a scoot, if you will! Colten just turned 11 months and has been moving around incredibly well using his technique of twisting, rolling, sitting, and more twisting, rolling and sitting. He moves himself all around the living room to get to toys. But today, TODAY he scooted! […]
Let’s start by clearing up some misconceptions – I’ve heard so many in the past few weeks! While the helmet may in fact protect Colten’s noggin from bumps, lumps and brothers, that is not the purpose of it. Someone out there does actually make little padded hats (they resemble the early version of football helmets, […]
The words that keep replaying over and over in my head from earlier today are “he should have been fitted MONTHS ago”. It’s like that song that is stuck in your head and you sing it all day over and over, the same lines, never really singing the whole thing. There are enough things with […]
How can I not start the post with a picture when this kid is so photogenic?! (Warning: this post is lengthy, but I scattered tons of pictures and videos throughout.) This past Thursday, Colten had his 9-month checkup with the Myelomeningocele Clinic at U of M C.S. Mott Children’s Hospital. At the Myelo Clinic, each […]
When a doctor tells you your son has no motor or sensory response on his legs at all, it is pretty damn awesome to see him use a Johnny Jumper! We have not used this much with him because the treadmill study folk want us to avoid use of it until after he’s done with […]
Bet you were wondering if we would go a whole month without posting… NOPE! Life has been very chaotic around here and I just have not had the frame of mind to sit and blog. As I sit in the older two boys’ room this evening, fighting my third bloody nose of the day, sweltering […]
Before I get into the nitty gritty about the CT scan, Colten would like to share a few accomplishments! Today he figured out that when he rolls over, he can roll over another time and get to more toys that his brothers have left strewn about. Funny thing is that he really only rolls onto […]
The Adventures of Colten Robert 