When we brought Colten home from the hospital back in October, Richard was changing Colten’s diaper for the first time at home and in complete exasperation said, “We are never going to be able to leave him with anyone! We are never going to be able to go anywhere ever again!” At the time, we […]
The other day Parker told me, “I love Colten because he has purple feet and that’s my favorite color!” (And yes, that really is Parker’s favorite color!) It was both adorable and sad at the same time. Those of you that have been on our adventure may already have a sense of some of this, […]
Sometimes I have to remember that Colten’s adventures include not just his medical experiences but also the normal child development progressions! This week, our EarlyOn PT, April (we really like her – she is great!), worked with Colten on starting to feel his body roll over, sit up, and grab at toys. He isn’t necessarily […]
You would think this is an obvious thing, right? How your kidneys measure and appear on an ultrasound isn’t the same as how they function and process our bodily fluids. Makes sense. Apparently yesterday, I assumed one meant the other. In other words, yesterday’s post claiming “no more reflux” was a lie. All lies. So […]
This post’s working title was “More Weird Places I’ve Breastfed My Children”. Sigh. Warning: this post talks a lot about breastfeeding, bladder function and bowel function. If you’re uncomfortable with any of these, please stop reading. There are also not many pictures today seeing as the topics are what they are 😉 This afternoon I […]
At Colten’s follow-up cranial ultrasound today, Dr. Maher was pleased at the functioning of the shunt and the levels of fluid in Colten’s ventricles. So we got a thumbs up and as long as all continues to progress this way, we will not need to see neurology for another six months. YAY! That seems insanely […]
Sunday night I was taking some pictures of Colten and realized he was holding his head completely differently than before. [PLEASE NOTE: The Bumbo seat, for those that have not heard of it, is an infant seat that has been recalled at various times by the manufacturer after families filed complaints of their children falling […]
We have some appointments down at Mott Children’s in the next couple of weeks – follow-ups with Pediatric Neurology and Pediatric Urology. So before another round of medical posts, here’s just an update on life in general. Those of you that know us know that our family leans a little to the MSU side of […]
The day after Christmas, Richard and I enjoyed a quiet, post-holiday-chaos evening at home with just Colten. Parker and Max stayed at my parents’ after the Christmas day festivities. Good thing too… I think Parker had consumed at least five cookies between 8-9pm! We had just finished watching a movie and Colten was sound asleep […]
[This post was originally drafted on 12/14 but I forgot to remove it from draft mode; so the reference to “today” isn’t really today, 12/20!] I never realized how often I touch babies’ toes, or how often everyone touches babies’ toes, until everytime it happens I am reminded that he cannot feel it. That certainly […]
The Adventures of Colten Robert 