About six and a half months ago from today, we were sitting at a ColdStone, attempting to squash our anxiety with ice cream. We had just left a brief appointment at the OB’s office, where they took a quick ultrasound to just check the baby’s breech position. They told us there was “a mass in […]
Lots of randomness in this post. Bear with us! I was perusing some spina bifida related videos on YouTube today and Children’s Hospital of Philidelphia has a wonderful 12-part series about Spina Bifida, from diagnosis to surgery and beyond. This specific one is one of the best descriptive videos about what Spina Bifida is and […]
When we brought Colten home from the hospital back in October, Richard was changing Colten’s diaper for the first time at home and in complete exasperation said, “We are never going to be able to leave him with anyone! We are never going to be able to go anywhere ever again!” At the time, we […]
The other day Parker told me, “I love Colten because he has purple feet and that’s my favorite color!” (And yes, that really is Parker’s favorite color!) It was both adorable and sad at the same time. Those of you that have been on our adventure may already have a sense of some of this, […]
At Colten’s follow-up cranial ultrasound today, Dr. Maher was pleased at the functioning of the shunt and the levels of fluid in Colten’s ventricles. So we got a thumbs up and as long as all continues to progress this way, we will not need to see neurology for another six months. YAY! That seems insanely […]
Sunday night I was taking some pictures of Colten and realized he was holding his head completely differently than before. [PLEASE NOTE: The Bumbo seat, for those that have not heard of it, is an infant seat that has been recalled at various times by the manufacturer after families filed complaints of their children falling […]
In case you didn’t know that, now you do! We did not. Colten has been getting his daily dose from a bottle originally opened back in November. Thankfully, his dose is small (1mL) and just preventative. Because his urine refluxes back up into his kidneys, the amoxicillin is to prevent a UTI (the urologist is […]
The day after Christmas, Richard and I enjoyed a quiet, post-holiday-chaos evening at home with just Colten. Parker and Max stayed at my parents’ after the Christmas day festivities. Good thing too… I think Parker had consumed at least five cookies between 8-9pm! We had just finished watching a movie and Colten was sound asleep […]
We have been to a lot of appointments in Colten’s short life. Most of them revolve around doctors reminding us what is wrong, what he cannot do, or the future hardships he may endure. We get a lot of paperwork that talks about disabilities, insurance, assistance, programs and more. Today’s appointment was different. We had […]
[This post was originally drafted on 12/14 but I forgot to remove it from draft mode; so the reference to “today” isn’t really today, 12/20!] I never realized how often I touch babies’ toes, or how often everyone touches babies’ toes, until everytime it happens I am reminded that he cannot feel it. That certainly […]
The Adventures of Colten Robert 