Amidst all those crazy abbreviations for medical exams, today brought a weird allergic reaction, a pending test result, a fairly good test result, a series of unknown data, and an interesting observation. Oh yes, and a run-in with my favorite Mott buddies! Warning… this post is ridiculous in length. As in you might need to […]
I hesitate to say “hate” because I imagine there are days in our future much more frustrating than yesterday. So I’ll save that for a special occasion. But yesterday, we had a slight crash from the previous day’s mini-success and then had more fall out from our physical therapy appointment. I remember what someone said […]
Most parents, as they watch their babies develop the first couple years of life, get great joy out of seeing their child reach all the milestones – reaching, rolling, sitting, crawling, standing, walking. These happen at a fairly normal pace and we anticipate them eagerly! I know I watched with pride as our first son, […]
A couple weeks ago, Richard and I went out to see the local high school play and his mom came by to hang out with the boys (thank you!). That little stinker Colten decided that he would roll over from back to belly for the first time while we were gone! Then over a week […]
Today was the first day. The first time. The first of many, many times sure to be in our future. Today I was at an event in Lansing (The Great Cloth Diaper Change – a worldwide event in the Guinness Book of World Records!) and the mom/baby pairs were lined up in somewhat of an […]
Sub-title: Cranio Doc Calls Mom NOT Neurotic! Last week Friday, we took Colten down to Mott for an appointment we had requested to have his head shape looked at more closely. The appointment was with the pediatric neurosurgery department, since they already have had dealings with his skull/head (shunted hydrocephalus, mild Arnold Chiari II malformation […]
There will be a more thorough update about physical therapy and EarlyOn in a few weeks, after the official 6-month review. Today’s appointment though was a good one and I got some pictures to share. Colten has not been super cooperative in past appointments and really, how much are you going to do with a […]
About six and a half months ago from today, we were sitting at a ColdStone, attempting to squash our anxiety with ice cream. We had just left a brief appointment at the OB’s office, where they took a quick ultrasound to just check the baby’s breech position. They told us there was “a mass in […]
It’s the greatest superhero fight ever! Not really but the title made me think of superheros. And it put a hilarious image in my head! Anyhow, in our last post from Colten’s Myelo Clinic check, we mentioned that there was slight concern about his head shape. Between that and the fact that his head circumference […]
Lots of randomness in this post. Bear with us! I was perusing some spina bifida related videos on YouTube today and Children’s Hospital of Philidelphia has a wonderful 12-part series about Spina Bifida, from diagnosis to surgery and beyond. This specific one is one of the best descriptive videos about what Spina Bifida is and […]
The Adventures of Colten Robert 