Here is a prelude to the video at the end of this post… In case you have not been reading from “day 1” here, Colten was born 10/3/2012, with Spina Bifida myelomeningocele, level L4-5 (low lumbar). Colten’s spine and nerves did not grow in a typical fashion. He cannot feel parts of his legs and […]
It was the weirdest thing last night… Colten was playing in his play yard then suddenly he rolled over, stuck his butt up, crawled over to the couch, pulled himself up and started RUNNING around the house! I was completely freaking out because of course he is only two months old and should not be […]
Today was Colten’s first PT appointment with EarlyOn Michigan. He had some appointments back in the hospital, and EarlyOn came to do paperwork and lay out his IFSP a few weeks ago. But today we finally got to work! I am still struggling with therapies as a whole. Part of me really wants to ignore […]
This crazy thought has been rattling around in my head for a couple weeks: I don’t want my son to walk. That’s insane, right?! Who wouldn’t want their child to walk?! But there is that thought, rattling around. I can’t seem to shake it. And it makes me feel guilty. Worst mother EVER. Then tonight […]
Colten’s motor response has been completely absent below the knees. Until a few days ago. When feeding him, we often mess with his toes, feet and calves, hoping to stimulate his body to make the connection that “hey, there’s something down there!” We were told that usually 2-3 weeks post-op is when you have what […]
Colten and I arrived at Mott Children’s Emergency Room around 5:30 PM. They were expecting us, which made it easy to check-in. Heck, the ER staff even called me around 4:30 to ask where we were since we had not shown up yet but were on their “expect soon” list. Talk about good ER service! […]
I hope not. I hope it’s us being paranoid but I’m thinking there’s an issue with Colten’s shunt. We will be taking Colten back to Mott Children’s today at some point. There isn’t a rush but his fontanel (soft spot on top of head) is very full and tight – similar to how it was […]
[Today was a super-long day, so this is a super-long post!] Tuesday we came back to Mott Children’s Hospital for Colten’s follow-up cranial ultrasound and long story short, had some movement of appointments for the better. So today (Thursday) Richard and I spent the day in Ann Arbor for Colten’s first “Myelo Clinic”. During clinic, […]
Today started off at Mott Children’s Hospital for Colten’s follow-up cranial ultrasound from his shunt placement on October 17th. After some other appointment switches, we also worked in his hip ultrasound today so we don’t have to drive down to Ann Arbor three times in 10 days. The radiologist was even nice enough to throw […]
The two older boys went off with one of my sisters to a Halloween party so we have a little peace, quiet and TIME to post tonight! Colten continues to heal and be a pretty normal baby. Here are some pictures of his scars… Today is also the first day he can lay on his […]
The Adventures of Colten Robert 